What happened at our last meeting

Feb 4th – 2109

Our Feb 4th meeting was a little bit of a watershed for the group, time to separate from the professional helping hands of the hospital staff, and with what we have all learnt over the past four years strike a more independent note, in both the way we operate and the future objectives we hope to aspire too.

It’s been an interesting journey of discovery sustaining a self-help group with ideas and purpose, which as a founder member I feel has helped far more than those who could physically attend a group meeting in person.

Keep Moving

2019 has one major wellbeing event which will take place in October. We will take this opportunity to gather new members and showcase what recovery and longer-term survival of our various conditions has to offer.

Social Media

To keep people connected we have set up a private closed Facebook Group to keep our members up to date with the goings on in the Worlds of Sarcoma and Bone Cancer. If you haven’t already joined get texting and help make the endeavour a success.

Future Venues

It’s our intension to only hold two meetings each year at RJAH Hospital (a) to maintain a natural connection but (b) to develop a far less hospitalised environment to avoid what you might call “Ground Hog Day ” Syndrome, so both patients and carers can forget past trials and tribulations of the treatment history already endured and concentrate on future long term recovery.

 

 

 

 

The Socketless Socket

Transfemoral and Knee Disarticulation Re-Defined.

We’ve re-invented sockets from the ground up. No more static socket shape. No more hard ischial seat.  No more loss of suction.  The Socket-less Socket truly conforms to the user, providing a custom-fit socket every time you put it on.

 

The future of prosthetics.

If you’re the kind of person who wants full control of how your socket fits, this technology is for you. Fitting a prosthetic socket is now micro-adjustable in real-time to create a socket as individual as the toughest patient.

 

As conforming as a hammock.

Our patent pending swing technology perfectly conforms to the user just like a hammock, providing a soft floating cushioned seat on every step.

 

Micro-adjustable comfort, every morning.

Conventional prosthetics are static in shape, and require frequent fitting adjustments to match the ever-changing human body. Our technology fits differently. We enable you to micro-adjust for a comfortable fit every time you put your prosthesis on. Our new z-straps give an ultra low profile look.

 

Huge advancements for Small users.

Introducing Pediatric size Socket-less Sockets. Same great technology now available from toddler to adults.

 

Ridiculously Light.

Our NASA-based lightweight design and materials are only a fraction of what conventional sockets weight – with a typical weight reduction of nearly 2 pounds. You’ll be amazed at how light a socket can feel.

 

The Flower just got more beautiful.

Introducing a revolutionary new way of fitting a flexible inner socket. Our flower distal cup technology with our special NASA-based mesh fabric creates a form-fitting inner socket that’s flexible enough to fold up in the palm of your hand.

 

 

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Mountain Climbing Trips : Adventure Travel

BMC Paraclimbing Series 2015 R2

A short film of round two of the BMC Paraclimbing Series 2015 at the Castle Climbing Centre, London.

The BMC Paraclimbing Series is organised by the BMC, MCofS, Link4life, OnThisRoc, Manchester Climbing Centre, Newcastle Climbing Centre, Edinburgh International Climbing Arena and the Castle Climbing Centre, London.

This is a series of events to provide disabled people with an opportunity to have a go at climbing in the competitive environment.

See the Series here

PIP Personal Independence Payment

Personal Independence Payment (PIP) is extra money to help you with everyday life if you’ve an illness, disability or mental health condition.

You can get it on top of Employment and Support Allowance or other benefits. Your income, savings, and whether you’re working or not don’t affect your eligibility.

Before You Claim PIP

More help here from the Citizens Advice website

What this Website is About

Oswestry Sarcoma Support Group was the Brain Child of Ian Carruthers and Macmillan Clinical Nurse Specialist S/R Jane Evans.

Robert Jones Agnus Hunt Hospital Oswestry offers some of the best Soft Tissue Sarcoma and Bone Sarcoma treatment anywhere in the UK, as any current and former patient will tell you.

The only thing that has been missing is a patient self-help support group, patients and carers who have lived through, or are living through the diagnosis treatment and recovery phases, of soft tissue and or bone sarcoma.

Our website aims to offer practical advice for both patients and carers, sharing stories and offering help hints and tips to make the sarcoma experience a little less frightening, and a bit more bearable.

If you would like to share your sarcoma story to date, or have a useful hint or tip you think is worth sharing, please feel free to contribute either in a written text, or an audio file, or short video, all contributions gratefully received.

 

More Amazing People

Aaron ‘Wheelz’ Fotheringham – Wheelchair Action Sports

Unit, one of the world’s fastest growing action sports brands, has just released a six-minute mini-documentary on one of their star athletes, Aaron “Wheelz” Fotheringham.

Wheelz, 19, has obtained a cult following globally for his antics with the Nitro Circus Live Tour after successfully landing 40ft Backflips, Double Backflips and Front-flips in the past six months… in a wheelchair.

The Las Vegas teenager is one of the most inspirational athletes in the entire action-sports industry; he hasn’t let spina bifida dictate his lot in life and has taken his custom-built wheelchair to places they’ve never been before, including skateparks, BMX parks and of course, the Giganta-Ramp.

Unit sat down with Wheelz during a recent trip to the USA and found out what makes the laid-back, humble teenager tick. Visit youtube.com/unitridersaus to check it out.

Following on from the successful Nitro Circus Live New Zealand Tour Wheelz is back in Vegas and preparing for the Nitro Circus Australian Regional Tour, which kicks off on March 9 at Albury’s Lavington Sports Ground.

Courtesy: Unit Clothing unitriders.com
Producer: Allan Hardy
Music: ‘Hello World’ by Amely myspace.com/amely

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